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For women caregivers, a lifelong, often-unsung role

While men and women are both likely to fulfill caregiving roles, female caregivers spend many more hours doing so. They pay the price on a number of levels.

Take Care: Tales, Tips and Love from Women Caregivers is available through columnist Elayne Clift’s website. A reading from the anthology takes place Friday, June 23 from 6 to 7 p.m. at Everyone’s Books, 25 Elliot St., Brattleboro.

Saxtons River

Women have always been caregivers. Whether looking after small children, elders, other family members, or friends in small communities, whether tending to others in urban settings with limited support systems or acting as professional caregivers in institutional settings, we have been the primary providers of physical care and emotional support in a variety of settings and circumstances throughout the ages.

Today, that remains true, and our gender’s role as the main caregiver might be more vital than ever.

As women have children later and elders live longer, we are challenged by competing demands and shrinking resources.

Many of us have elderly parents living in a time of growing dementia or increasing frailty; others have parents who need supervision in nursing homes.

At the same time, we are parenting children who often have their own physical or emotional challenges. We might also have spouses in failing health who need our attention. And who among us would not be there for an ill friend or family member?

Whether we are younger women focused on child care, older women charged with being there for a sick spouse or parent, or women in the sandwich generation who are called upon to take care of children and parents concurrently, many of us find ourselves in the caregiver role well before we expected to be there and often feeling less prepared than we wish.

We are all caregivers at some stage of our lives, and we all have stories to tell about what that has meant for us.

* * *

It’s important to emphasize women as caregivers because, while men and women are both likely to fulfill caregiving roles, female caregivers spend many more hours providing care.

They spend an average of 680 hours per year providing care — 160 more hours on average than male caregivers (almost 25 percent). Female caregivers might spend as much as 50 percent more time providing care than male caregivers.

That’s partly because men tend to manage care rather than administer it. Men are more likely to hire someone to help with tasks such as bathing or dressing or other daily activities because they are not as comfortable providing personal care as women are.

According to the Family Care Giving Alliance, 80 percent of long-term care in the U.S. is provided by unpaid or informal caregivers. Of these, 61 percent are women, most have reached middle age, and 59 percent have jobs.

The average caregiver is a 49-year-old woman, married and employed, caring for a mother who doesn’t live with her.

In 2013, an estimated 15.5 million caregivers provided 17.7 billion hours of unpaid care for their respective aging family members with dementia alone. Most of these caregivers were daughters and daughters-in-law.

The value of all the informal care that women provide ranges from $148 billion to $188 billion annually. Caregivers who leave the workforce to care for a family member lose on average more than $304,000 in wages and benefits over their lifetime.

* * *

Women, who provide the majority of informal care, play many roles while caregiving, from hands-on health providers and care managers to surrogate decision-makers and advocates.

Women caregivers are less likely than others to attend to their own health and self-care needs. They often suffer from stress, isolation, fatigue, and depression. Thirty-five percent of them report finding it difficult to make time for themselves, and 29 percent report difficulty balancing work and family issues.

Because of these issues, I compiled Take Care: Tales, Tips and Love from Women Caregivers, an anthology of prose and poetry by women caregivers that give testimony to what caretaking has meant for contemporary women, whose lives are complex enough to begin with.

Here is an excerpt from “All the Longing Left in the Body,” an essay by Oregon writer Kate Gray.

“It could be you stopping me. It could be you quite a few years from now, half of your face a little lower than the other, your hair turned gray, and your clothes neatly tucked. You would probably do the same thing she did in the women’s restroom, if you were in her shoes.

“‘Sorry,’ she said, on the way to her car. ‘That’s my husband in the other stall. Don’t mind him.’ When the woman returned, a blue waffled diaper in hand, she said, ‘Thank you for understanding.’

“It could be any of us, waiting outside a bathroom stall, overcoming the body’s instinct to grimace at the acrid smells, taking a diaper much bigger than the one used for an infant, carrying it carefully, disposing of it.

“It could be any of us, bending down to hug our spouse or partner, wrap our arms under their arms, straighten our legs to lift the two of us to standing.

“It could be you loving someone so much that you take him into the women’s room with you, that you find a way to make a dance out of changing a diaper, that you don’t mind doing what you have to do, as long as you are two together.”

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Originally published in The Commons issue #412 (Wednesday, June 14, 2017).

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